*Although we wrote this post together, we have chosen to present the following through Nikki’s eyes.
Nikki's Story: Journey through Topamax
By the time Topamax was added to my regimen in 2014, it no longer surprised me that another medication was prescribed from yet a different class of drugs known as anticonvulsants. During a one-year period, I was prescribed five add-on medications to try, with Topamax being the fifth.
Despite being told these medication changes were for the best, I rarely experienced anything positive from the drugs prescribed to me. My mental and physical health continued to decline, and the constant cycling of medications only added to the confusion and instability I was already living with.
It was at this time I started to recognize my entire treatment as a kind of drug roulette—one medication removed, another immediately added, often from an entirely new class.
My memory of taking Topamax is essentially gone. According to my mom’s journal—one of the only reliable records from that time—I became sick almost immediately and was taken off the medication shortly after starting it.
Even though I was extremely unwell, my healthcare provider didn’t pause to evaluate what was truly happening with my health. Instead, she increased the dosage of my existing medications of Lithium and Abilify which she now referred to as my “base” medications. Around this same time, she also prescribed Xanax, a controlled substance, as a way to help me “get through difficult times.”
By early January 2015, exhausted and still searching for real relief, I made the decision once again to change healthcare providers. I hoped that somewhere, with someone new, I might finally find a path toward wellness.
Tips I’ve Learned After Years in an Inadequate Treatment Program
These are insights I wish I had understood earlier—shared so you can approach your own wellness journey with greater awareness.
TIP Number 1:
Realize that everyone is different.
What helps one person may not help another.
Chemical sensitivities are real and can shape how your body responds to treatment.
Mental health awareness is an essential part of overall wellness.
Living a healthier, more balanced life may be a lifelong commitment, but it does not have to consume your life.
TIP Number 2:
Before beginning any prescription drug treatment plan:
Be aware of your symptoms and how they affect you.
Learn about different treatment options—not just medications.
Request appropriate bloodwork, including thyroid levels, vitamin deficiencies, and other relevant tests.
Weigh the pros and cons of each option.
Understand that there are no quick fixes when it comes to healing.
TIP Number 3:
While taking a prescribed medication:
Try to recognize changes in your symptoms—both positive and negative.
Realize that you may not notice every change on your own.
Ask yourself: Do I feel better or worse mentally or physically?
Are the effects mostly helpful or mostly harmful?
Should this medication be continued, stopped, or replaced?
Should another medication be added to the current one?
If you’re experiencing negative effects, consider whether hidden sensitivities may be involved.
And always keep in mind: your diagnosis may not be accurate.
TIP Number 4:
When withdrawing from a medication:
It can be difficult to recognize that what you’re feeling is withdrawal.
Withdrawal symptoms may last longer than your healthcare provider suggests.
Stopping a medication abruptly can lead to severe symptoms.
Even when tapering according to guidelines, negative effects can still occur.
TIP Number 5:
A medication prescribed to you may not be FDA-approved for your specific condition; off‑label use is common.
Verify how long the medication has been approved and how long it has been on the market for your condition.
Learn More
♥
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Note: All information in “Nikki’s Story and Mom’s Story” are based on detail journals covering seven years of Nikki’s life on prescription drugs.
Medical Disclaimer: We share informational resources that are intended to help you with your self-care plan. We are not professionals. We write based on personal experience and personal research.
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