*Although we wrote this post together, we have chosen to present the following through Nikki’s eyes.
Nikki's Story: Journey through Latuda
By 2014, I was still feeling deeply unwell—physically and mentally—so my healthcare provider added Latuda to the three drugs I was already taking. Latuda, an atypical antipsychotic, was in the same class of medications I had already tried without success. This time, I was given 20 mg sample packets to “test” before filling a full prescription.
At that point in my life, the years of medications had blurred together. I had little memory left to distinguish one drug’s negative effects from another. According to my mom’s medication journal, Latuda made me sick almost immediately. The reaction mirrored the same negative effect I had experienced with Zyprexa—another atypical antipsychotic.
After only a few doses, my healthcare provider told me to stop taking Latuda.
And just like that, another drug was added to the rotation: Topamax.
My life had become a kind of drug roulette—add one, remove one, adjust another—always searching, never finding relief.
By then, my comprehension was nearly gone. The side effects from the medications I was already on made it hard to think clearly, let alone question anything. Because of that, I became easy to persuade. Each time a new drug was suggested, I was told it might finally be the one that works. Even though years of medications had brought no real improvement, I was repeatedly assured that Lithium and Abilify were my “base medications” and shouldn’t be changed.
I trusted my healthcare provider. I believed that what I was being told was in my best interest—that eventually the right “cocktail” would be found. And because I was desperate for relief from the constant pain, I clung to any hope offered to me, even when it was false. I trusted blindly, because I didn’t know how to do anything else.
After years of misdiagnosis and treatment, I have a newfound awareness and understanding of the following:
The term “cocktail” was lightly used by my healthcare providers to describe the combination of drugs being prescribed to me.
The fact I would have significant withdrawals from my so called base medications, probably was the deterient why no healthcare provider tried to eliminate them from my treatment plan.
Tips for Awareness
1. Before starting any prescription drug treatment:
Be aware of your symptoms and how they affect your daily life.
Learn about different treatment options—not just medications.
Ask for appropriate bloodwork, including thyroid levels, vitamin deficiencies, and anything else that may influence your mental or physical health.
Weigh the pros and cons of every option.
Understand that there are no quick fixes when it comes to healing.
2. While taking a prescribed medication:
Try to notice any changes in your symptoms—both positive and negative.
Accept that you may not recognize every change, especially subtle ones.
Ask yourself: Do I feel better or worse mentally or physically?
Are the effects mostly helpful or mostly harmful?
Should this medication be continued, stopped, or replaced?
Should a new medication be added to the ones you’re already taking?
If you’re experiencing negative effects, consider whether hidden sensitivities might be involved.
And always keep in mind: your diagnosis may not be accurate.
3. When withdrawing from a medication:
It can be difficult to recognize that what you’re feeling is withdrawal.
Withdrawal symptoms may last longer than your healthcare provider suggests.
Stopping a medication abruptly can lead to severe symptoms.
Even when tapering according to guidelines, negative effects can still occur.
4. Remember your individuality
We are all different—our bodies, our histories, our sensitivities.
If your healthcare provider doesn’t treat you as an individual, it may be worth questioning the approach.
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Note: All information in “Nikki’s Story and Mom’s Story” are based on detail journals covering seven years of Nikki’s life on prescription drugs.
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